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　　“作為(wei)一名基(ji)層人(ren)(ren)(ren)(ren)大代(dai)表(biao)，我主(zhu)要(yao)從事腦癱(tan)兒童(tong)公益救(jiu)助(zhu)(zhu)事業，在山東財金(jin)集團(tuan)的堅強領導下，公益救(jiu)助(zhu)(zhu)項目已(yi)累計為(wei)13259名腦病(bing)兒童(tong)患者提供救(jiu)助(zhu)(zhu)診療服(fu)務，成功救(jiu)助(zhu)(zhu)腦癱(tan)患兒910人(ren)(ren)(ren)(ren)，救(jiu)助(zhu)(zhu)區(qu)域涉及(ji)新疆、西藏、重慶(qing)等(deng)11個省市。經(jing)評估(gu)檢(jian)測，手術靶點準確率達(da)100%，有效率達(da)98.2%，治(zhi)療技術達(da)國際先(xian)進水平。”這是全國人(ren)(ren)(ren)(ren)大代(dai)表(biao)、山東財金(jin)健康集團(tuan)諾萊醫學腦癱(tan)兒童(tong)公益救(jiu)助(zhu)(zhu)中心主(zhu)任王川，在第十四屆全國人(ren)(ren)(ren)(ren)民(min)代(dai)表(biao)大會第一次會議后(hou)的山東代(dai)表(biao)團(tuan)審(shen)議時的發言。

　　經(jing)統計，我國目前共(gong)有(you)(you)600多萬(wan)名(ming)腦(nao)癱(tan)患者(zhe)，其(qi)中(zhong)12歲以下的(de)腦(nao)癱(tan)兒(er)(er)童(tong)有(you)(you)178萬(wan)人(ren)，每年(nian)(nian)新增(zeng)腦(nao)癱(tan)病例4到6萬(wan)人(ren)。據不(bu)完全(quan)(quan)分析，一名(ming)腦(nao)癱(tan)患兒(er)(er)對(dui)家(jia)庭(ting)與社會造(zao)成的(de)經(jing)濟壓力達50多萬(wan)元，而全(quan)(quan)國70%的(de)腦(nao)癱(tan)患兒(er)(er)都生活(huo)在(zai)貧困(kun)地區(qu)。在(zai)山東(dong)(dong)省(sheng)(sheng)，持(chi)有(you)(you)殘(can)疾(ji)(ji)(ji)人(ren)證(zheng)的(de)殘(can)疾(ji)(ji)(ji)兒(er)(er)童(tong)10.26萬(wan)人(ren)，其(qi)中(zhong)腦(nao)癱(tan)兒(er)(er)童(tong)占比9.5%。山東(dong)(dong)省(sheng)(sheng)委、省(sheng)(sheng)政(zheng)府高(gao)度重視殘(can)疾(ji)(ji)(ji)人(ren)康(kang)(kang)復(fu)工作，去年(nian)(nian)全(quan)(quan)省(sheng)(sheng)累計為殘(can)疾(ji)(ji)(ji)人(ren)提供(gong)基本康(kang)(kang)復(fu)服務(wu)174.8萬(wan)人(ren)次(ci)，康(kang)(kang)復(fu)救助殘(can)疾(ji)(ji)(ji)兒(er)(er)童(tong)4.2萬(wan)人(ren)次(ci)，殘(can)疾(ji)(ji)(ji)人(ren)康(kang)(kang)復(fu)服務(wu)率、殘(can)疾(ji)(ji)(ji)兒(er)(er)童(tong)康(kang)(kang)復(fu)救助總量均持(chi)續位(wei)居全(quan)(quan)國首位(wei)。近年(nian)(nian)來，山東(dong)(dong)財金(jin)健康(kang)(kang)集團(tuan)旗(qi)下諾萊醫學攜手(shou)山東(dong)(dong)省(sheng)(sheng)殘(can)聯與中(zhong)國健康(kang)(kang)促進基金(jin)會，先后開展“共(gong)享陽光—關愛殘(can)疾(ji)(ji)(ji)兒(er)(er)童(tong)”救助項(xiang)目、“新的(de)希望”全(quan)(quan)國腦(nao)癱(tan)兒(er)(er)童(tong)公(gong)益(yi)項(xiang)目等，開辟了機器人(ren)腦(nao)立(li)體定(ding)向手(shou)術(shu)治療(liao)兒(er)(er)童(tong)腦(nao)性癱(tan)瘓的(de)應用系列模式(shi)，擴展機器人(ren)腦(nao)立(li)體定(ding)向手(shou)術(shu)治療(liao)的(de)疾(ji)(ji)(ji)病譜，同時加(jia)強了外科手(shou)術(shu)治療(liao)兒(er)(er)童(tong)腦(nao)性癱(tan)瘓的(de)有(you)(you)效性和安全(quan)(quan)性。

　　對于(yu)如何完(wan)(wan)善(shan)全(quan)(quan)(quan)國(guo)(guo)腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)康(kang)(kang)(kang)(kang)復救(jiu)助(zhu)體(ti)(ti)系，保(bao)障殘(can)疾人(ren)基(ji)(ji)本民生(sheng)(sheng)(sheng)、改善(shan)殘(can)疾人(ren)生(sheng)(sheng)(sheng)活(huo)品質(zhi)、促進殘(can)疾人(ren)全(quan)(quan)(quan)面(mian)發(fa)展，王川提(ti)出，一要完(wan)(wan)善(shan)政策(ce)支(zhi)持和(he)(he)(he)資(zi)(zi)金保(bao)障，實現(xian)腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)全(quan)(quan)(quan)生(sheng)(sheng)(sheng)命(ming)周(zhou)期的(de)(de)康(kang)(kang)(kang)(kang)復救(jiu)助(zhu)。國(guo)(guo)家層面(mian)建(jian)(jian)立(li)健(jian)全(quan)(quan)(quan)慈善(shan)事業稅收優惠制(zhi)度，完(wan)(wan)善(shan)和(he)(he)(he)落實激(ji)勵(li)(li)政策(ce)措施，補短板強(qiang)弱項(xiang)(xiang)，激(ji)發(fa)全(quan)(quan)(quan)社會(hui)關(guan)心慈善(shan)、參與(yu)(yu)(yu)慈善(shan)的(de)(de)熱情(qing)。加大(da)針(zhen)對腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)救(jiu)助(zhu)工作(zuo)的(de)(de)資(zi)(zi)金投(tou)入，并保(bao)障各項(xiang)(xiang)救(jiu)助(zhu)政策(ce)的(de)(de)有(you)效銜(xian)接與(yu)(yu)(yu)執(zhi)行。總結推(tui)廣山東省腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)康(kang)(kang)(kang)(kang)復救(jiu)助(zhu)專項(xiang)(xiang)行動(dong)經驗，在全(quan)(quan)(quan)國(guo)(guo)建(jian)(jian)立(li)統一的(de)(de)腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)監測(ce)與(yu)(yu)(yu)服務體(ti)(ti)系，規范腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)篩查、治(zhi)(zhi)療、康(kang)(kang)(kang)(kang)復、教育、就業等(deng)(deng)方(fang)面(mian)的(de)(de)服務流程和(he)(he)(he)質(zhi)量(liang)管(guan)(guan)理。完(wan)(wan)善(shan)腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)信息(xi)化基(ji)(ji)礎建(jian)(jian)設，實行實名制(zhi)動(dong)態管(guan)(guan)理，優化腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)康(kang)(kang)(kang)(kang)復救(jiu)助(zhu)申請審核，實現(xian)腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)全(quan)(quan)(quan)生(sheng)(sheng)(sheng)命(ming)周(zhou)期信息(xi)的(de)(de)互(hu)聯互(hu)通與(yu)(yu)(yu)一體(ti)(ti)化救(jiu)助(zhu)。二要加快技(ji)術(shu)(shu)(shu)應(ying)用(yong)(yong)和(he)(he)(he)服務探索(suo)，支(zhi)持腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)救(jiu)治(zhi)(zhi)手段的(de)(de)迭代創新(xin)(xin)。深入實施創新(xin)(xin)驅(qu)動(dong)發(fa)展戰略，加快推(tui)動(dong)科(ke)技(ji)成果(guo)轉(zhuan)移轉(zhuan)化，充(chong)分(fen)發(fa)揮科(ke)技(ji)創新(xin)(xin)與(yu)(yu)(yu)生(sheng)(sheng)(sheng)物(wu)技(ji)術(shu)(shu)(shu)應(ying)用(yong)(yong)助(zhu)推(tui)器作(zuo)用(yong)(yong)，鼓勵(li)(li)和(he)(he)(he)支(zhi)持利用(yong)(yong)先進智(zhi)能技(ji)術(shu)(shu)(shu)、生(sheng)(sheng)(sheng)物(wu)技(ji)術(shu)(shu)(shu)提(ti)升腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)治(zhi)(zhi)療與(yu)(yu)(yu)康(kang)(kang)(kang)(kang)復的(de)(de)水平與(yu)(yu)(yu)服務供給，針(zhen)對應(ying)用(yong)(yong)智(zhi)能技(ji)術(shu)(shu)(shu)與(yu)(yu)(yu)生(sheng)(sheng)(sheng)物(wu)技(ji)術(shu)(shu)(shu)的(de)(de)創新(xin)(xin)項(xiang)(xiang)目，給予政策(ce)和(he)(he)(he)資(zi)(zi)金支(zhi)持，切實推(tui)動(dong)解決產業和(he)(he)(he)企(qi)業的(de)(de)技(ji)術(shu)(shu)(shu)難(nan)題。三要倡(chang)導國(guo)(guo)企(qi)帶頭(tou)和(he)(he)(he)全(quan)(quan)(quan)民參與(yu)(yu)(yu)，搭(da)建(jian)(jian)社會(hui)性更強(qiang)的(de)(de)公益慈善(shan)捐贈平臺。探索(suo)設立(li)全(quan)(quan)(quan)國(guo)(guo)腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)公益專項(xiang)(xiang)基(ji)(ji)金，服務于(yu)廣大(da)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)的(de)(de)健(jian)康(kang)(kang)(kang)(kang)成長，充(chong)分(fen)調動(dong)社會(hui)力量(liang)以公益慈善(shan)捐贈形式參與(yu)(yu)(yu)腦(nao)癱(tan)(tan)(tan)兒(er)(er)(er)(er)(er)(er)童(tong)(tong)(tong)(tong)(tong)康(kang)(kang)(kang)(kang)復救(jiu)助(zhu)，團結凝聚(ju)更廣泛的(de)(de)社會(hui)愛心力量(liang)。鼓勵(li)(li)國(guo)(guo)有(you)企(qi)業結合鄉村振興、東西協作(zuo)、黃(huang)河戰略、援(yuan)疆援(yuan)藏等(deng)(deng)幫扶項(xiang)(xiang)目，帶動(dong)社會(hui)企(qi)業和(he)(he)(he)公眾參與(yu)(yu)(yu)專項(xiang)(xiang)基(ji)(ji)金公益慈善(shan)捐贈，積極奉獻(xian)愛心、履行社會(hui)責任。

　　黨的(de)(de)(de)(de)二(er)十(shi)大報告和今年的(de)(de)(de)(de)政(zheng)府工作(zuo)報告都強(qiang)調(diao)要(yao)“促進殘(can)疾人事業全(quan)面發展(zhan)”。王川表示，山東財金健康集團(tuan)將以建(jian)設國內(nei)一流(liu)水平(ping)的(de)(de)(de)(de)現代化腦科學臨(lin)床研究中心(xin)為契機，加大科研力量投(tou)入，持續(xu)做好腦癱兒童弱勢群(qun)體的(de)(de)(de)(de)救助(zhu)工作(zuo)，扛起(qi)國有(you)企業社會責任，持續(xu)為殘(can)疾人事業插(cha)上“科技的(de)(de)(de)(de)翅膀”，把更多的(de)(de)(de)(de)溫暖傳遞到孩(hai)子們心(xin)中。

【責任編輯：語謙】